Join an important webinar presented by the Critical Path Institute: New Findings on Inequities in Rare Diseases: How They Impact Research and Clinical Trials Processes.

Jenifer Ngo Waldrop, Executive Director of our Rare Disease Diversity Coalition (RDDC), will share insights from our recent national survey, Inequities in the Rare Disease Community: The Voices of Diverse Patients and Caregivers. This research, based on input from over 2,800 participants, uncovers the challenges faced by underrepresented rare disease patients in accessing healthcare and clinical trials.

One key finding: 50% of respondents reported feeling overwhelmed by the demands of managing care or caregiving, spotlighting the emotional and logistical strain experienced by many. 

This is an opportunity to learn more about these crucial issues and their impact on the rare disease community.